I don't know what's going on, it feels like my guts aren't in their proper place. I have a pain in the center of my abdomen and feel the familiar bloating or fluid accumulating there. I'm weak and sort of nauseous and feel like I have low blood sugar and low oxygen.
I went to the store and it just about killed me to get all the groceries in the cart, then on the counter, then back in the cart, then in the car, then out of the car, then in the fridge...I had to pick today to go shopping for dog food and kitty litter. 40 and 50 lb bags. I'm just stubborn with my routines is all. Every other Wednesday is shopping day and that's that. I buy enough food to get by eating the same stuff every day. I have a few days of odd things and frozen foods for desperate situations, but today didn't seem like one of them.
Until it did.
Now, I'm sitting here wondering what am I going to do? Sadness trigger No. 42: "What do I do?" Sharon asked me, only a day or so before she died. It was one the last things she ever said, and I truly believe she just wanted to feel better. Like I do now. And for me, right now, I guess that means drenching my cheeks in tears.
I managed ok in the store, which is also a trigger. I shopped there so many times over the years, always for both of us. So now, when I pass certain items, I will be reminded of the last time I bought this or that product. And the whole time period comes back into focus. What she asked me to buy, what may or may not have been going through her mind at the time, whether or not I balked or gave her a hard time about it.
But mainly, that buying this item for her, in her condition where she could really only enjoy a few things, was somehow going to keep her going. If I just brought her the maple bar, the big chocolate Easter bunny, the Oreo cookies, the chocolate cake...it would somehow make her feel better, and I would be an ok guy, despite all my other shortcomings. She never really asked for anything unreasonable and was always grateful for whatever I got her.
I found the promise of products to produce happiness to be temporary, though. She'd still get worse, and maybe not enjoy the maple bar or the pizza or the occasional beer that she'd ask for. She really wanted to keep things going and still be the same, but even that couldn't happen. No matter how bad she got, there was always a lower, yet unforeseen level of disability that she would have to endure.
I asked her what kept her going. For a while it was food, sex and TV shows. She was still bedridden, but I guess I can call those the good ol' days. She could talk, even scream at me, very clearly and feed herself and oh, you know, the usual stuff we all take for granted. Showering with assistance, rolling over on her own in bed. I guess the milestones added up, because when sex was no longer possible (and believe me, we kept that going right up to the point of failure and beyond) it put a nail in the coffin that was pretty much the death of her.
But she kept on going. It was food and TV shows for a while, but then she couldn't feed herself, or stay awake through much of anything. So I would feed her and she would re-watch shows a couple of times until she had gotten the gist of it. Then she just gave up trying to watch and let them play as a way of inducing sleep. She couldn't even click with her one mouse finger or see much of anything on the computer screen, so I'd set up 4 hours or so worth of downloaded shows, and she'd drift in and out of sleep. I did my chores or tried to find an activity to do during those hours.
As fucked up as those days were, I still miss them and wish I could rewind my life to that point, in order to take in as much of the good and erase all the bad that I did. I don't know if I could be a better caregiver now, but I sure would realize what was at stake. I would find a way to show her the love that I felt so devoid of at the time, but now realize mattered more than anything else that I did for her.
Right now, as crappy as I feel, I can still type. I can sit in a chair. I feel like lying down and just sleeping, but it's too early. I should probably eat something. I went shopping, but nothing sounds good. I may just skip dinner and lie down and listen to Enya. It was her death music. I played it to soothe her when she was in her final end stage. I knew they were her final days, and I didn't know what else to do. I feel like it's my end days, too. And I don't know what to do.
Going shopping didn't help. Doing my sit ups and pushups this morning didn't help, either. Sitting here writing is keeping my mind off of my pain, but it is also making me weaker to spend so much time in this chair. I went for a walk yesterday and the fresh air seemed to help. I stopped and talked to a neighbor up the road and was completely unaware of any pain or fatigue for the moment. But trudging back home, I got heavier and heavier.
I'd finished out my afternoon stuff and wasn't feeling too terrible, so I ate dinner and wrote an email. These emails have been keeping my mind and spirit more alert. I have to focus a bit and consider that there is a person at the other end of the email with whom I wish to communicate. I must be tidy and thoughtful, not random and off the cuff like this blog. I have to care about something, someone else for a change.
People are being too nice to me, and it's forcing me to try to live up to their expectations. It's easier being alone and not dealing with anyone, but it's also pretty damn lonely. And boring. And hellish. I can only take so much of that, and then I break. I'll be a good boy; don't put me back in the box. But I'm still ready to hide out at the drop of a hat, kind of like when my cats scamper under the bed when I turn on the vacuum cleaner. Or drop anything on the floor. Or make an extra loud crinkle sound with a paper bag.
Well, that's it for now. I've exhausted myself for the day. I'll have to wait to see what tomorrow brings.